I Am Disappearing

He said it out of the blue. We were at home, probably about a month before he walked out of the house that fateful night in January 2019. I was gazing into the refrigerator trying to decide what to make for lunch. He had become quite a fussy eater over the duration of his disease, and I was lucky that he at least liked grilled cheese or peanut butter and jelly sandwiches, items that were super easy for me to make. He was funny; he would get stuck on something and then that would be all he wanted. Like Chili’s baked potato soup. He loved that soup. We got to know many of the servers at our local Chili’s, and sometimes when they saw us, they’d already have a bowl, hot and ready for him, by the time we were seated.

Standing in front of the refrigerator, I was contemplating forgetting the cheese or peanut butter sandwich and hopping into the car instead for Chili’s. Jim may have been stuck on his baked potato soup, but I had the luxury of choosing anything I wanted, and right now one of their salads sounded inviting. And then Jim threw me a curve.

“I am disappearing.”

He had come up behind me and said it matter-of-factly, but I instantly felt the magnitude of his words – and each one ran a separate knife through my heart. Through my soul. He said it again.

“I am disappearing.”

I thought I might explode into tears, and I didn’t want that. I quickly took his hands. “YOU are not disappearing. Not to me … not ever to me.” I hugged him hard, right inside the open doorway of the refrigerator. Despite my wishes, the tears were building up behind my eyes, and I quickly moved back and closed the refrigerator. “Hey,” I said, turning, “let’s go to Chili’s for lunch. How ‘bout that? I’ll go grab my purse.”

We did, and he downed two bowls of potato soup. But I, I barely touched my salad. I watched him eat his soup, his entire focus on the task at hand. He never looked up, he never looked around. And I realized as I sat there that this was a good day; that I would remember and appreciate this day because the future would hold many days never as good as this.

And, unfortunately, I was right.

One Of My Biggest Fears

I don’t want him to ever be afraid. I don’t want him to be scared.

Yesterday I had to take my car in for service. The Lexus dealership where I get my vehicle serviced is far enough away from home that if it’s going to take more than a couple of hours, I usually get a loaner and drive back. But this service was supposed to only take two hours so I chose to stay in Glendale and spend some of  the time in the Glendale Galleria Mall.

I informed Jim and told him that he could call me if he had questions about anything. During the time that I was in the mall, I called to check on him but he didn’t pick up. Most of the time, he forgets to carry his phone or he just doesn’t hear the ring in his pocket but I figured he would call me if needed.

My first stop at the Galleria was Peet’s Coffee where I sat with a non-fat latte and read through some research material for a book project. Tedious and very confusing stuff on sectarian conflicts in the Middle East; not necessarily my choice of projects but as a neophyte in the freelance world, I’m tackling it. I doubt anything I write is going to screw up chances for peace in the Middle East.

The Glendale Galleria is pretty big so I took my time and strolled all the floors, stopping in just a couple of the stores to look around. By ninety minutes, I had had enough of the noise and crowds and called for a ride back to the car dealership. Fortunately, by the time I got there my car was serviced, newly washed and waiting for me. Apart from the fact that I have to go back in a month for new front brakes (something I was expecting) all was well and I thanked Fred, my longtime service rep.

I called Jim to tell him I was on my way home but, once again, no answer. I wasn’t concerned, however, and expected to find him right where I left him, sitting at the family room table, coloring or looking at a movie on his iPad. I was almost right.

He was standing on the front lawn waiting for me. “I’ve been so worried,” he said, hurrying over to me and hugging me, purse, bags and all. I put my arms around him and felt his shirt, wet and sweaty and sticking to his back. I looked up at him. “Why are you so hot and sweaty?” I asked.

“I’ve been walking to the end of the block and back looking for you,” he said. “I was  worried.”

“Out walking back and forth in 104° heat?! Babe, why didn’t you just call me?”

“I was afraid you might be driving and try to answer the phone. It might be dangerous.”

He knows I have Bluetooth in the car; I just have to touch a button on the car’s steering wheel and the phone call is connected. He knows … but now it’s ‘he knew.’ What still should be in the present is now in the past. Not just a past that’s remembered but a past that’s forgotten.

“Let’s get in the house out of the hot sun,” I say and we go inside. Bags are barely on the floor before he hugs me again. “I was so worried.”

I kiss him and say, “I’m gonna change my clothes and then make us lunch.” I head to the closet and my eyes are already tearing. I know there are terrible and difficult things coming that I can’t even imagine going through but this, for now, is my biggest fear. I don’t want him to ever be afraid. I don’t want him to be scared.

Yes, there are times I am so frustrated with him, with our situation, I could scream. But to see him scared and vulnerable; this intelligent, wonderful, caring man with the incredibly crazy sense of humor; this doctor who could relieve a patient’s pain so quickly that they cried in sheer relief; to know that he is so dependent on me, so much so that my absence can bring about such panic and fear; the weight of such responsibility is overwhelming. I know I must try harder to not let that happen again. I also know I will fail; it’s just inevitable. But I must try.

I take a deep breath, wipe my eyes, and after changing my clothes, head into the kitchen to make us lunch. “How about grilled turkey and cheese?” I ask.

 

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