I Am Disappearing

He said it out of the blue. We were at home, probably about a month before he walked out of the house that fateful night in January 2019. I was gazing into the refrigerator trying to decide what to make for lunch. He had become quite a fussy eater over the duration of his disease, and I was lucky that he at least liked grilled cheese or peanut butter and jelly sandwiches, items that were super easy for me to make. He was funny; he would get stuck on something and then that would be all he wanted. Like Chili’s baked potato soup. He loved that soup. We got to know many of the servers at our local Chili’s, and sometimes when they saw us, they’d already have a bowl, hot and ready for him, by the time we were seated.

Standing in front of the refrigerator, I was contemplating forgetting the cheese or peanut butter sandwich and hopping into the car instead for Chili’s. Jim may have been stuck on his baked potato soup, but I had the luxury of choosing anything I wanted, and right now one of their salads sounded inviting. And then Jim threw me a curve.

“I am disappearing.”

He had come up behind me and said it matter-of-factly, but I instantly felt the magnitude of his words – and each one ran a separate knife through my heart. Through my soul. He said it again.

“I am disappearing.”

I thought I might explode into tears, and I didn’t want that. I quickly took his hands. “YOU are not disappearing. Not to me … not ever to me.” I hugged him hard, right inside the open doorway of the refrigerator. Despite my wishes, the tears were building up behind my eyes, and I quickly moved back and closed the refrigerator. “Hey,” I said, turning, “let’s go to Chili’s for lunch. How ‘bout that? I’ll go grab my purse.”

We did, and he downed two bowls of potato soup. But I, I barely touched my salad. I watched him eat his soup, his entire focus on the task at hand. He never looked up, he never looked around. And I realized as I sat there that this was a good day; that I would remember and appreciate this day because the future would hold many days never as good as this.

And, unfortunately, I was right.

Making Up For Time Lost

It’s been over 2 years since I’ve written on this blog. My only excuses now might be laziness or exhaustion, but I prefer my rationale at the time. I was just beginning my trip with Jim through his Alzheimer’s/dementia journey, and so I was on an information search, checking out various blogs, Alzheimer’s websites, talking with people I know who have dealt with family members or friends suffering with various forms of dementia. There was just so much information out there, so many different blogs and stories, I couldn’t help feeling that I would be adding nothing new to the discussion.

But it’s been over five years now since I noticed Jim’s first symptoms, and I have learned a lot; perhaps not a lot more about the disease itself, but I’ve learned a lot about me, a lot about Jim and our fluid, changing relationship, and a lot about the many meanings of family. So that is where I think I will be taking this blog. I will likely bounce back and forth, as things come to me, or as Jim changes.

And though when I first began this blog, I did not want to post photos or give more information about Jim’s identity, I no longer feel so strongly about those things. Nothing I write now will ever hurt or embarrass him.

This thing called life can sure be a bumpy ride. But I’m grateful for every tumultuous minute I’ve had on this magnificent planet, bumps and all. And, though it may seem hard to believe, I am grateful for this time I am sharing with my husband. I believe I am a better, more compassionate person for the experience. Though I’d be less than honest if I didn’t also say I wish none of it had ever happened.

(Above photo taken March 24, 2017 at Descanso Gardens, La Canada Flintridge, CA. Jim still enjoyed taking photos with his 35 mm Nikon back in 2017. Today he no longer knows how to use the camera.)

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